Home > Relationships, Sex in Practice > Or: How I learned to stop worrying and love the cane
03 Dec

Or: How I learned to stop worrying and love the cane

Laramy Fuquerton and I had just finished having holy. shit. sex. The kind that makes you want to update your facebook status to “just had 14 orgasms! (hi, mom)” right after you collapse and die. It didn’t seem exactly polite to collapse and die on top of Laramy, though, especially since he’d been so unfazed with what I’d done on him moments before when his cock caught my g-spot exactly right. So I swung one leg out of my cowgirl straddle and promptly tipped over, right off the bed, after which we both cracked up. A lot.

It wasn’t a big deal to either of us, and it certainly could’ve happened to anyone, but it’s the kind of thing that happens fairly often to me, and not just in bed. It can happen at any time in my world. Often if I’m standing for a little while unsupported, I’ll lose my balance and start to topple. This is one of the reasons I normally use a cane, along with having joint pain and being a total pimp.

There are times when you really can’t forget that you’re disabled. I focus much harder on the fact that someday I want to be able-bodied again, but right now I have numerous limitations. I got sick several years ago with an illness that often manifests as an invisible disability (there is usually pain, energy loss, and cognitive dysfunction, to name a few), but it’s caused mobility problems as well in my case, so it’s a little more, well, visible. Sure, occasionally on a good day someone will ask me “do you need to use that cane or is it just a fashion statement?”, and it’s nice to know that I can “pass” if I need to, but back when I needed a walker (or even currently when I’m having a not-so-good day) there was no ambiguity: when people looked at me they knew I was messed up somehow.

I’ve been asked if I was born this way or if I’d been injured. I’ve been talked to with very loud voices, the kind obnoxious people use to talk to immigrants, or that you sometimes have to use with the elderly. I’ve been stared at. People in the mall have been completely unwilling to meet my eye. I’ve been genuinely grateful when men and women have opened doors for me, or even just gave me a friendly smile. Because sometimes, when it’s clear that my cane is not just a fashion statement, I have felt absolutely invisible.

Sometimes I’m too exhausted to move, let alone fuck; there have been times when my hips or knees or head have been in so much pain I’ve had to stop in the middle of sex, even if I desperately want to keep going. It’s embarrassing for me to try to explain to a partner that I can’t put in the energy that he (or she) deserves. It sucks to have your libido roaring and a willing lovely ready to go, and your body just punks out. But there’s that other, sneakier part of being disabled and horny that has probably hobbled me far more than any real, physical limit: since I’ve been disabled, I’ve had some trouble feeling like a sexual being. I went through a phase a couple years ago in which I could barely convince myself I was human. I actually saw myself more as this limping, shuddering, twitching chimera of pain, failure, and decrepitude. The looks, the avoidance I saw on people’s faces proved that I wasn’t a real person anymore to them, and my disappointment that I could no longer do the things I expected of myself made me doubt that I was even me anymore.

I’d begun seeing my boyfriend at the time, Edwin Pomble, about a year before I got sick, and he stayed with me while my health degenerated. I was both thankful to him and resentful that I should have to be thankful. Every time someone said to me “you’re so lucky he’s sticking by you through this” or “he’s definitely a keeper: not every guy would stay” I was vaguely irritated. I agreed with these statements– I was lucky, and wouldn’t have expected him to tough it out, but I also disliked the implication that all I could rightly ask as a sick and disabled woman was for someone that wouldn’t leave. No one, not even I, took the time to wonder why it wasn’t reasonable for me to ask for more. It didn’t matter that Edwin and I had dismal intellectual chemistry or that we had incompatible goals in life. He wasn’t dropping broken, disabled me, so it was inconceivable that I could ever leave him.

So when I finally did break up with him I felt tremendous guilt because I knew I had no “right” to do so. It wasn’t my place, as the damaged one, to reject him. And he agreed with my self-loathing logic, saying “I didn’t stay with you through all the bad times just so I could end up cut off from the good times ahead…” …you know, the good times in my speculative able-bodied future. Essentially, he felt that staying with me was like waiting for an investment to pay off, and that the time with the disabled me was more or less a tax write-off.

Single again, I was pretty sure that I wouldn’t be dating much until I was well. If I ever got well, that is. It was difficult for me to imagine anyone wanting to build any kind of relationship with me. Sure I could still have sex, since a girl who can’t walk unassisted is about as non-threatening as females come. There will always be, I theorized and hoped, someone out there willing to use you for sex when it’s obvious that even you don’t think you’re worth a call afterward. But for someone to care about me? That seemed fantastical. After all, I’d lured Edwin into my life when I had been perfectly healthy; now I had no bait with which to perform a comparable bait and switch.

But I have the kind of friends who tend to drag you out to into civilization after a break-up. You know, the good kind. And a weird thing happened when I started going out more and meeting more new people. People noticed my cane, but sometimes they also noticed my eyes, my ass, and my sense of humor. They noticed that I’m pretty much always laughing and having fun, and all of this together– including the cane– intrigued some people. Still others didn’t really care about the cane either way. The bottom line was that most people cared far less about the fact that I was disabled than I ever expected.

Socially, I’m much more comfortable with my cane and my poor coordination than I was even just a year ago. What used to mortify me is just a part of my life now: My hair is a vivid shade of crayola, I’m wearing a garnet pendant, kicking off a pair of pumas, popping my prescription meds. My cane is propped beside me, ready for action. And all that’s just what I’m like, for now. It would be nice if some of those details changed, but none of them make me less of a person or even less of a sexual person. My self-image is better than it’s been in a while, and I’m having regular, scorching-hot sex with a guy who cares enough to ask how I’m feeling today and never acts like he’s doing me some huge favor by not treating me like a moped (fun to ride, but don’t let your friends catch you). It still sucks when I’m too sick and tired to go out and I end up missing fun (and that happens a lot), but I know that disability is more of a detail than my identity. It took some time, but I can brazenly look anyone in the eye, and if people have a problem returning my gaze, that’s their issue to cope with.

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  1. Dano
    December 9th, 2009 at 18:31 | #1

    Yea, I can grok that… have problems myself that prevent my from wanting (or able) to go out. Good to read about someone who’s further ahead of me.

  2. Dano
    December 11th, 2009 at 13:05 | #2

    (and that was meant in the more accepting/emotional way… I know I still have a ways to go)

  3. quizzical pussy
    December 11th, 2009 at 13:42 | #3

    @Dano Oh, that’s definitely how it comes across. Good luck getting where you want to be! (I have quite a ways to go myself, and know how it feels) :)

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